Cure Dale's Duchenne

The Getler’s (another DMD family) made a challenge through PPMD to match up to 50,000.00 for a heart research study to see if drugs like Viagra in smaller doses can be benficial to the hearts of DMD boys.  We matched the 50,000.00 and through PPMD the last number we heard was another 38,000.00 had been raised besides the $100,000.00.  We hope this will be a great year for our boys with positive results from the heart studies and other clinical trials currently going on.

We all had a wonderful Christmas.  The boys are having a ball with a few new Lego’s, Wii and DS games.  Amazing how fast they can put together Lego’s.

At Dinner Dale and Lelia broke a wish bone and Dale wished for ending Duchenne for him.  We hope we can all put an end to DMD in 2011.

We went to a local craft festival Saturday that was really crowded.  Dale was trying out a smaller scooter to see how it would work in the crowd.  He was a bit overwhelmed with the number of people there and was constantly wanting to keep going so we could get out of there.  We rounded a corner and he saw a woman at a booth selling wood carvings and wanted to go see them.  He rolled right into the middle of her area and got off the scooter to look around.  He was asking her questions about some of the products. There were giant wood watchbands with a clock on them that Dale said a giant could wear.  Then a really strange thing happened.  He slid up to me and wispered for me to give him one of the HelpSaveDale business cards I carry in my hip sack.  He took the card and handed it to the lady and said I have Duchenne,  I can’t run very fast.  I explained a little bit more about Duchenne.  Dale just walked to my right and sat down on his scooter and just sat there looking at her and the wood works.  It was the only time he’s ever done something like that and it was very strange that he wanted to sit right there with her and the woodworks.  I was so impressed and surprised at how this had all transpired.  You have to know Dale to know how unusual this is for him.  It was great to see.

October 2nd, 2010
3946 SW 89th Dr
Stratford Ridge
8AM-12PM

We are accepting donations of goods to sell at event. Please call Alisha Bowen to coordinate drop off/pick-up
352-246-3164
We are also having a Bake Sale and will be selling coffee and drinks. Come and browse or just donate.
All Proceeds will go to Cure Dale’s Duchenne Fund